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Baby Watch Early Intervention

Interagency Coordinating Council

"The mission of the Utah Interagency Coordinating Council for Infants and Toddlers with Special Needs is to assure that each infant and young child with special needs will have the opportunity to achieve optimal health and development within the context of the family."

Introduction to ICC: Interagency Coordinating Council for Infants and Toddlers with Disabilities and their Families

What is Early Intervention?

Baby Watch Early Intervention is a statewide, comprehensive, coordinated, interagency, multidisciplinary system, which provides early intervention services to infants and toddlers, younger than three years of age, with developmental delay or disability, and their families. Early intervention is the "baby" piece of Special Education. The program is authorized through the Individuals with Disabilities Act (IDEA), Part C, (Early Intervention Program for Infants and Toddlers with Disabilities). In 1987, Utah's Governor designated the Department of Health (DOH) as the "Lead Agency" for the early intervention program. Utah was one of the very first states in the nation to fully implement its early intervention program after securing the approval of the State Legislature.

At present, there are 16 early intervention programs that serve more than 2,000 children per month in the state. It is anticipated that the demand for these services will continually increase.

What is an Interagency Coordinating Council (ICC)?

The creation of an ICC was established with the passage of federal law P.L. 99-457 in October 1986. Developers of the legislation recognized the need for a group outside of the Lead Agency to "advise and assist" in the development of such a system. The independent nature of the ICC is one feature that gives the group the potential for making a contribution to the development of the service system.

Another feature of the regulations is the multidisciplinary and the multi-constituency representation on the ICC. By specifying what types of members should be included on the ICC, the legislation enables states to bring together consumer, clinical, political, and administrative communities. This merging of a variety of communities facilitates the building of bridges between the involved agencies. In addition, the committee has provided a broader vision of the service system based upon the participation and contributions of all relevant providers and consumers.

The ICC, a body required by statute to be appointed by each state's Governor, is to be an important participant in the development of a well-coordinated service system (Federal Interagency Coordinating Council, June, 1989). Each state ICC determines, in conjunction with the Lead Agency, the nature of the roles and tasks it chooses to perform at various policy stages.

The Utah ICC is an interagency group whose membership represents the statewide early childhood services community. It is comprised of up to 25 members.

The purpose of the Utah ICC is to advise and assist the lead agency in the Division of Community and Family Health Services, Bureau of Children with Special Health Care Needs in the UDOH.

Much of the work of the ICC is accomplished in standing committees and ad hoc task force meetings that perform long range planning, study specific issues and make appropriate actions. A member of the ICC chairs each committee.

What role does the ICC play?

The Council functions as a planning body at the systems level and advocates for children birth to three years of age and their families with or at-risk for a developmental disability. The Council acts in three major roles:

(1) ADVISOR: Providing advice to the Lead Agency, Governor and the state legislature on issues related to the development of a coordinated system of early intervention services for children with or at-risk for a developmental disability and their families.

The federal law defines the Council membership and the program in order to give it a unique view of the "service systems".

The parent component of the Council gives it a perspective which may be different from that presented by state agencies which are represented on the Council.

The Council can use its special vantage point to be recognized as a source of information for the Lead Agency, Governor, and legislators, as well as other key decision makers in the state.

(2) NEGOTIATOR: Working as an advocate to encourage a particular course of action by the state.

A major activity of the Council is to "review and comment on the annual state plan for services for children birth to three years" as part of its overall responsibility to assess the service system as it exists in the state. This information as well as interagency coordination is another important goal of the program and puts the Council in a position to be effective in making changes in how services are provided in the state. With agency and provider representatives on the Council, communication can more easily be effected and gaps between agencies can hopefully be bridged.

(3) CAPACITY BUILDER: Enhancing the ability of the overall service system to address service needs.

In this role, the Council works to increase the quality and quantity of desired supports and services from the public and private sectors, to ensure that all needy children and families will be provided early intervention services.